The Congressional Personalized Medicine Caucus and the Personalized Medicine Coalition co-organized a virtual Congressional briefing on April 28, 2022, titled "Promoting Innovation and Delivery of Cell and Gene Therapies."
At the United States Capitol on December 5, the co-chairs of the Congressional Personalized Medicine Caucus organized a briefing in cooperation with the Personalized Medicine Coalition to help educate their colleagues in the House and Senate about the importance of adopting public policies designed to alleviate educational, reimbursement, and clinical adoption challenges that make it difficult for clinicians to take full advantage of emerging opportunities in personalized medicine. The briefing featured remarks from leaders in academia, patient advocacy, and the diagnostics industry.
Jillian McKee, M.D., Ph.D., a Pediatric Epilepsy Fellow at the Children's Hospital of Philadelphia, will deliver this presentation on data-driven approaches to reconstructing disease trajectories in SYNGAP1-related disorders.
At this year’s Individualizing Medicine Conference, attendees will receive an inside look into how Mayo Clinic is connecting and accessing biospecimens from study design to clinical integration.
On May 24, 2023, PMC convened an audience of journalists, policymakers, and business leaders at the National Press Club in Washington, DC, where National Human Genome Research Institute (NHGRI) Director Eric Green delivered the Coalition's Annual State of Personalized Medicine Address on the past, present, and future of the field.
This Sepsis Alliance Symposium, focused on precision medicine in sepsis care and examining host-directed diagnosis and treatment for infectious diseases and sepsis, will allow learners to better understand the host response and how precision medicine might be applied.
A meeting of PMC's Public and Science Policy Committees will take place on June 28, 2023, from 12:00 - 2:00 p.m. ET in Washington, DC. PMC members will receive details and a registration link via email.
The American Cancer Society Cancer Action Network is hosting a half-day conference exploring the challenges of equitable pharmacogenomics research and testing for cancer patients.
Alexion/AstraZeneca Rare Disease, the EveryLife Foundation for Rare Diseases, the National Society of Genetic Counselors, and the Personalized Medicine Coalition will convene a reception with Congressional leaders and rare disease experts on Tuesday, July 18, at 5:30 p.m. to discuss how Congress, patient advocates, and industry leaders can work together to deliver faster diagnoses for rare disease patients. The reception will take place in Room 2322 of the Rayburn building. RSVP to Gwen Fuller at gfuller@forbes-tate.com.
On July 20, 2023, PMC and the Congressional Personalized Medicine Caucus co-hosted an educational briefing for Congressional staffers titled "Personalized Medicine and Mental Health." The briefing explored the burden of mental illness in the United States, the growing body of evidence supporting the value of pharmacogenetic-based testing in informing the treatment of mental health disorders, and what Congress can do to help expand patient access to improved diagnostic and treatment options.
The Next Generation Dx Summit convenes key opinion leaders across the world to share recent progress in diagnostic advancement and technology innovation.
On September 12, 2023, PMC, Codex4SMEs, and the European Infrastructure for Translational Medicine (EATRIS) will host a virtual tutorial on the regulatory pathways for bringing new diagnostics to market in the United States and Europe.
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