WASHINGTON (August 30, 2018)
The Personalized Medicine Coalition (PMC) is pleased to announce that the Patient-Centered Outcomes Research Institute (PCORI) has agreed to provide PMC with a Eugene Washington Engagement Award of $220,000 over a period of two years to support the development of a patient-centered research agenda that can advance personalized medicine, an evolving approach to health care that targets treatments to only those patients who will benefit from them. The research agenda developed during the project will be publicly disseminated and may inform future studies supported by PCORI, an independent nonprofit organization authorized by Congress to fund research that will provide patients, their caregivers, and clinicians with the evidence they need to make more informed health and health care decisions.
“This project was selected for Engagement Award funding because it will build a community equipped to participate as partners in clinical effectiveness research and develop partnerships and infrastructure to disseminate PCORI-funded research results,” said Jean Slutsky, P.A., M.P.S.H., Chief Engagement and Dissemination Officer, PCORI. “We look forward to working with PMC throughout the course of their two-year project.”
Thanks to recent developments in the science underpinning personalized medicine, health care providers can now use diagnostic tests to determine a patient’s risk of developing certain diseases and likely responses to some treatments. By combining the information from these tests with information about each patient’s circumstances and values, providers can design prevention and treatment plans that are aligned with each patient’s health goals. Circumventing the traditional trial-and-error process used to select a treatment that works for each patient, personalized medicine can make the health system more effective and efficient.
During the first stage of its engagement award from PCORI, PMC will work with its members in the patient and research communities to develop a set of patient-centered principles to advance personalized medicine during four web forums, each of which may convene up to 100 participants. The Coalition will then invite approximately 45 patients, researchers and health care providers to an in-person roundtable in Washington, D.C., at which participants will translate the principles into research objectives. Finally, PMC will publish the complete research agenda in the form of a white paper.
“There are fundamental challenges in developing the necessary evidence that must be overcome before personalized medicine products and services are fully integrated into health care,” said PMC President Edward Abrahams. “This project will identify patient-centered research priorities to fill evidence gaps impeding the rapid adoption of personalized medicine.”
Christopher J. Wells
About the Personalized Medicine Coalition:
The Personalized Medicine Coalition, representing innovators, scientists, patients, providers and payers, promotes the understanding and adoption of personalized medicine concepts, services and products to benefit patients and the health system. For more information about PMC, please visit www.personalizedmedicinecoalition.org.
PCORI is an independent, nonprofit organization authorized by Congress in 2010 to fund comparative effectiveness research that will provide patients, their caregivers, and clinicians with the evidence needed to make better-informed health and health care decisions. PCORI is committed to seeking input from a broad range of stakeholders to guide its work. For more information about PCORI, visit www.pcori.org.