PMC drives a research agenda that advances personalized medicine by identifying key research priorities and commissioning studies that examine the clinical and economic value of personalized medicine in various diseases states.
Ongoing projects include:
- Moving Beyond Population Averages: Patient Principles for a Personalized Medicine Research Agenda, through which PMC is using a Eugene Washington Engagement Award for $220,000 provided by the Patient-Centered Outcomes Research Institute (PCORI) to develop a research agenda that can drive progress in personalized medicine.
- Personalized Medicine in Clinical Guidelines: A Progress Report, which will benchmark clinical progress in personalized medicine thus far by providing a list of the circumstances in which current clinical guidelines already include personalized medicine strategies as standard of care.
- Evaluating the Clinical and Economic Utility of Whole Exome Sequencing-Based Diagnostic Tests for Patients With Rare and Undiagnosed Diseases: A Research Study, which will provide evidence for whole exome sequencing (WES) platform developers, payers, and providers about the clinical and economic utility of WES when applied to patients with rare or undiagnosed diseases.